Programs & Expertise

Evaluation and Research

Evaluation and research are integral components of François-Xavier Bagnoud (FXB) Center programs and address education and training strategies, multifaceted program evaluation, clinical practice, patient outcomes, and clinical trials. Evaluation activities—including needs assessments—are used to inform program development, track program progress, document outcomes and accomplishments, and disseminate knowledge and lessons learned. In addition, FXB Center personnel are actively involved in the School of Nursing HIV Research Collaborative, a group of faculty and staff engaged in advancing HIV-related research. 

FXB Center research funded by the National Institute of Nursing Research (NINR) was the first to examine the effects of severity of illness and antiretroviral treatment and the effects of stressful life events on quality of life in in children living with HIV infection. Evaluation and research projects supported by the Health Resources and Services Administration (HRSA)/HIV AIDS Bureau (HAB), the U.S. Centers for Disease Control and Prevention (CDC), and the New Jersey Department of Health Division of HIV/STD/TB Services have focused on a number of topics including the needs and care of women living with HIV, prevention of perinatal HIV transmission, and evaluation of training and technical assistance resources. Examples, listed below, illustrate the integration of FXB Center research and evaluation with programmatic funding; some projects have received direct support and others have developed through networking supported by the funded program.

Publications and Presentations

• Perinatal HIV Exposure Surveillance and Reporting in the United States, 2014
  Kathleen A. Brady, Deborah S. Storm, Azita Naghdi, Toni Frederick, Jessica Fridge, Mary Jo Hoyt
  DOI: 10.1177/0033354916681477 | First Published December 12, 2016
  http://www.publichealthreports.org/
• Nelson J, Kinder A, Satcher Johnson A, Hall HI, Hu X, Sweet D, et al. Differences in selected HIV care continuum outcomes among people residing in rural, urban, and metropolitan areas – 28 United States jurisdictions. Journal of Rural Health. 2016. http://onlinelibrary.wiley.com
• Spach DH, Wood BR, Karpenko A, Unruh KT, Kinney RG, Roscoe C, Nelson J. (2016). Creating a national HIV curriculum. Journal of the Association of Nurses in AIDS Care, 27(3): 261-273. doi: 10.1016/j.jana.2016.02.002
  View the article here.
• Willard S, Nelson J, Reyes D, Linn A. (2016). Advancing HIV nursing practice: The doctor of nursing practice HIV specialty at Rutgers, the State University of New Jersey. Journal of the Association of Nurses in AIDS Care, 27(3): 234-239. doi: 10.1016/j.jana.2016.02.007
  View the article here.
• Nelson J. November 12, 2016. Rebuilding the National HIV Workforce. Presentation given at the Association of Nurses in AIDS Care 2016 Annual Conference. Atlanta, GA.
• LGBTQ Patient Care chapter added to textbook — A new chapter titled LGBTQ Patient Care authored by Mary DiGiulio, Peter Oates & Wendy Ritch was added to the 2017 Elsevier textbook: Primary Care A Collaborative Practice, 5th edition by Buttaro, Trybulski, Polgar-Bailey & Sandberg-Cook.

HRSA/HAB

• Rural vs. non-rural HIV care continuum differences in the United States.  A collaborative study between the HRSA/HAB-supported AETC Program Rural Health Committee and the CDC.
• Needs assessment of clinics with Ryan White HIV/AIDS Program funding to inform the development of FXB Center’s HRSA/HAB-supported HIV-Medical Homes Resource Center.
• Evaluation of Shout-Out Health, community-participatory health promotion intervention was designed for women living with or affected by HIV.
• A multi-site survey and focus groups about women’s perspectives and concerns regarding routine prenatal testing.
• A multi-site study using qualitative methods to learn about factors that facilitate or are barriers to gynecologic care and Pap screening.

CDC

• Provider knowledge and attitudes about PrEP for safer conception: qualitative data from 7 U.S. Cities. Abstract 28.
• A national survey of state/jurisdiction perinatal HIV exposure surveillance.
• A review of literature regarding preconception and contraceptive care for women living with HIV.
• Evaluation Toolkit: Patient and provider perspectives about routine HIV screening in healthcare settings.
• Evaluation of a training of trainers (TOT) model for increasing providers’ knowledge of perinatal HIV screening and care in targeted jurisdictions with low rates of perinatal HIV screening.
• Evaluation of the effectiveness of multi-disciplinary strategic planning workshops to facilitate practice change, i.e., the implementation of routine/rapid HIV testing in labor and delivery and emergency departments.
• Analysis and report of needs assessment data in collaboration with the Botswana Ministry of Health: Caring for Health Workers: A National Strategy for Botswana.

New Jersey Department of Health Division of HIV/STD/TB Services

• Strategies to support the integration of preconception care in HIV primary care settings. 
• Integrating health and prevention services in syringe access programs: a strategy to address unmet needs in a high-risk population.

Child Health Program and the Roseanne H. Silbermann Foundation

• A survey of nursing services in public child welfare agencies in the United States.