Research

Research Approach

Our research and evaluation projects are directly informed by and address health needs of vulnerable groups, including but not limited to women, children, and racial/ethnic, gender and sexual minorities affected by profound health disparities. Our research questions arise from gaps we encounter in knowledge, practice, and inequitable health outcomes.

Recent Research
& Evaluation Topics

Routine sexually transmitted infection (STI) screening, testing, and treatment in clinical practice
United States HIV healthcare workforce
Decreasing structural racism and discrimination to improve health outcomes of staff and clients of color in HIV care clinics
Outcomes for children in Out of Home Placement –an annual evaluation
Destigmatization of HIV clinical care practices regarding race, ethnicity, gender, and sexual identity
Patient-centered approaches to cervical cancer screening in people with HIV and a uterine cervix
Destigmatization of mental health care and treatment among people with HIV

Publications

Authors listed in bold type represent current and former FXB Center staff.

2020-2025

Norberg A, Nelson J, Lin H, Lazo E, Stanislaus D, Chu C, Bolduc P. A Forecast of the HIV Clinician Workforce Need in the United States: Results of a Quantitative National Survey. J Assoc Nurses AIDS Care. 2024 Nov-Dec 01;35(6):486-494. doi: 10.1097/JNC.0000000000000495. PMID: 39480051.
Short WR, Simone JM, Chakraborty R, Finocchario-Kessler S. Addressing Fertility Desires and Preconception Care Needs of Men Living with HIV: Perspectives from HIV Providers about Addressing the Reproductive Needs of Male Patients. AIDS Care. 2020;33(1):80-85. doi:10.1080/09540121.2020.1719965
Simone JP, Hoyt MJ, Bogert L, Storm DS. A Nurse-Led Initiative to Improve Implementation of HIV Preconception Care Services. J Assoc Nurses AIDS Care. 2021;32(1):115-126. doi:10.1097/jnc.0000000000000212
Cullinen K, Hill M, Anderson T, Jones V, Nelson J, Halawani M. Improving Sexually Transmitted Infection Screening, Testing, and Treatment Among People with HIV: A Mixed Method Needs Assessment to Inform a Multi-Site, Multi-Level Intervention and Evaluation Plan. PLOS ONE. 2021;16(12). doi:10.1371/journal.pone.0261824
Lilly A, Cavella M, Roper-Lewis A, Weglarz M, Ayala L, Lilli AC, Greene M, Colabelli N, Duggan A. Improving Outcomes for Families of Children with Medical Needs Known to Child Welfare: A Nurse Care Coordination Program. Child Maltreat. 2022;27(2):267-278. doi:10.1177/10775595211044496
Chapman KS, Gadkowski LB, Janelle J, Koehler-Sides G, Nelson JA. Automated Sexual History and Self-Collection of Extragenital Chlamydia and Gonorrhea Improve Detection of Bacterial Sexually Transmitted Infections in People with HIV. AIDS Patient Care and STDs. 2022;36(S2):104-110. doi:10.1089/apc.2022.0078
Nelson J, Jones V. Project Introduction. AIDS Patient Care and STDs. 2022;36(S2):87-91. doi:10.1089/apc.2022.0101
Nelson JA, Zha P, Halawani M, Jones V. Evidence-Based Interventions Implemented into HIV Primary Care Clinics to Make Sexually Transmitted Infection Screening and Testing Routine: Outcomes of a Multi-Site Study.AIDS Patient Care and STDs. 2022;36(S2):92-103. doi:10.1089/apc.2022.0131
Short WR, Miller ES, Simone J, Statton A, Finocchario-Kessler S, Lampe M. Safety of Antiretroviral Exposure During Pregnancy: Opportunities to Close Data Gaps. Open Forum Infect Dis. 2024;11(8). doi:10.1093/ofid/ofae423
Norberg A, Nelson J, Lin H, Lazo E, Stanislaus D, Chu C, Bolduc P. A Forecast of the HIV Clinician Workforce Need in the United States. J Assoc Nurses AIDS Care. 2024 (in press).
Manavalan P, Gadkowski LB, Sachdeva A, Guha S, Porvasnik S, Nelson JA, Janelle JW. Acceptability of Multi-Level Sexual Health Interventions and Sexually Transmitted Infection Screening and Testing among Persons with HIV Across Three Clinical Sites in Florida. JAIDS. 2024 (in press).
Rosengren AL, Lelutiu-Weinberger C, Woodhouse EW, Sandanapitchai P, Hightow-Weidman LB. A Scoping Review of HIV Pre-Exposure Prophylaxis Stigma and Implications for Stigma-Reduction Interventions for Men and Transwomen Who Have Sex with Men [published correction appears in AIDS Behav. 2021 Sep;25(9):3046. doi: 10.1007/s10461-021-03163-6]. AIDS Behav. 2021;25(7):2054-2070. doi:10.1007/s10461-020-03135-2
Rosengren AL, Lelutiu-Weinberger C, Woodhouse EW, Sandanapitchai P, Hightow-Weidman LB. Correction to: A Scoping Review of HIV Pre-Exposure Prophylaxis Stigma and Implications for Stigma-Reduction Interventions for Men and Transwomen Who Have Sex with Men. AIDS Behav. 2021;25(9):3046. doi:10.1007/s10461-021-03163-6
Lelutiu-Weinberger C, English D, Sandanapitchai P. The Roles of Gender Affirmation and Discrimination in the Resilience of Transgender Individuals in the US. Behav Med. 2020;46(3-4):175-188. doi:10.1080/08964289.2020.1725414
Kerr J, Lelutiu-Weinberger C, Nelson LE, et al. Addressing Intersectional Stigma in Programs Focused on Ending the HIV Epidemic. Am J Public Health. 2022;112(S4):S362-S366. doi:10.2105/AJPH.2021.306657

2010-2019

Rothpletz-Puglia P, Storm D, Burr C, Samuels D. Routine Prenatal HIV Testing: Women’s Concerns and Their Strategies for Addressing Concerns. Matern Child Health J. 2012;16(2):464-469. doi:10.1007/s10995-011-0754-4
Hoyt MJ, Storm DS, Aaron E, Anderson J. Preconception and Contraceptive Care for Women Living with HIV. Infect Dis Obstet Gynecol. 2012;2012:604183. doi:10.1155/2012/604183
Burr CK, Storm DS, Hoyt MJ, Dutton L, Berezny L, Allread V, Paul S. Integrating Health and Prevention Services in Syringe Access Programs: A Strategy to Address Unmet Needs in a High-Risk Population. Public Health Rep. 2014;129 Suppl 1(Suppl 1):26-32. doi:10.1177/00333549141291S105
Treston C, Farley J, Harris O, Hoyt MJ, Kwong J, Van Nuys J. PrEP Works and is a Valuable Addition to the HIV Prevention Toolkit. J Assoc Nurses AIDS Care. 2015;26(3):224-226. doi:10.1016/j.jana.2015.02.002
Stephan G, Hoyt MJ, Storm DS, Shirima S, Matiko C, Matechi E. Development and Promotion of a National Website to Improve Dissemination of Information Related to the Prevention of Mother-to-Child HIV Transmission (PMTCT) in Tanzania. BMC Public Health. 2015;15(1). doi:10.1186/s12889-015-2422-x
Finocchario-Kessler S, Champassak S, Hoyt MJ, et al. Pre-Exposure Prophylaxis (prep) for Safer Conception Among Serodifferent Couples: Findings from Healthcare Providers Serving Patients with HIV in Seven US Cities. AIDS Patient Care and STDs. 2016;30(3):125-133. doi:10.1089/apc.2015.0268
Spach DH, Wood BR, Karpenko A, Unruh KT, Kinney RG, Roscoe C, Nelson J. Creating a National HIV Curriculum. J Assoc Nurses AIDS Care. 2016;27(3):261-273. doi:10.1016/j.jana.2016.02.002
Willard S, Nelson J, Reyes D, Linn A. Advancing HIV Nursing Practice: The doctor of Nursing Practice HIV Specialty at Rutgers, the State University of New Jersey. J Assoc Nurses AIDS Care. 2016;27(3):234-239. doi:10.1016/j.jana.2016.02.007
Brady KA, Storm DS, Naghdi A, Frederick T, Fridge J, Hoyt MJ. Perinatal HIV Exposure Surveillance and Reporting in the United States, 2014. Public Health Rep. 2017;132(1):76-84. doi:10.1177/0033354916681477
Brady KA, Storm DS, Naghdi A, Frederick T, Fridge J, Hoyt MJ. Perinatal HIV Exposure Surveillance and Reporting in the United States, 2014. Public Health Rep. 2017;132(1):76-84. doi:10.1177/0033354916681477
Norberg A, Nelson J, Holly C, Jewell ST, Salmond S. Experiences of HIV-Infected adults and Healthcare Providers with Healthcare Delivery Practices Influencing Engagement in Primary Healthcare Settings: A Qualitative Systematic Review Protocol. JBI Database System Rev Implement Rep. 2017;15(11):2645-2650. doi:10.11124/jbisrir-2016-003278
Aaron E, Blum C, Seidman D, Hoyt MJ, Simone J, Sullivan M, Smith DK. Optimizing Delivery of HIV Preexposure Prophylaxis for Women in the United States. AIDS Patient Care and STDs. 2018;32(1):16-23. doi:10.1089/apc.2017.0201
Simone J, Hoyt MJ, Storm DS, Finocchario-Kessler S. Models of HIV Preconception Care and Key Elements Influencing these Services: Findings from Healthcare Providers in Seven US Cities. AIDS Patient Care and STDs. 2018;32(7):272-281. doi:10.1089/apc.2017.0299
Andrews MM, Storm DS, Burr CK, Aaron E, Hoyt MJ, Statton A, Weber S. Perinatal HIV Service Coordination: Closing Gaps in the HIV Care Continuum for Pregnant Women and Eliminating Perinatal HIV Transmission in the United States. Public Health Rep. 2018;133(5):532-542. doi:10.1177/0033354918789912
Nelson JA, Kinder A, Johnson AS, et al. Differences in Selected HIV Care Continuum Outcomes Among People Residing in Rural, Urban, and Metropolitan Areas-28 US Jurisdictions. J Rural Health. 2018;34(1):63-70. doi:10.1111/jrh.12208
Norberg A, Nelson J, Holly C, Jewell ST, Lieggi M, Salmond S. Experiences of HIV-Infected Adults and Healthcare Providers with Healthcare Delivery Practices that Influence Engagement in US Primary Healthcare Settings: A Qualitative Systematic Review and Meta-Synthesis. JBI Database System Rev Implement Rep. 2019;17(6):1154-1228. doi:10.11124/JBISRIR-2017-003756

2000-2009

Brady MT, McGrath N, Brouwers P, et al. Randomized Study of the Tolerance and Efficacy of High- Versus Low-Dose Zidovudine in Human Immunodeficiency Virus-Infected Children with Mild to Moderate Symptoms (AIDS Clinical Trials Group 128). Pediatric AIDS Clinical Trials Group. J Infect Dis. 1996;173(5):1097-1106. doi:10.1093/infdis/173.5.1097
Paul SM, Grimes-Dennis J, Burr CK, DiFerdinando GT. Rapid Diagnostic Testing for HIV. Clinical Implications. N J Med. 2002;99(9):20-26.
Paul SM, Burr CK, DiFerdinando GT. Updated Recommendations for Reducing Vertical HIV Transmission. N J Med. 2003;100(9 Suppl):27-70
Gross E, Burr CK. HIV Counseling and Testing in Pregnancy. N J Med. 2003;100(9 Suppl):21-68.
Paul SM, Grimes-Dennis J, Burr CK, DiFerdinando GT. Rapid Diagnostic Testing for HIV. Clinical Implications. N J Med. 2003;100(9 Suppl):11-64.
Storm DS, Boland MG, Gortmaker SL, et al. Protease Inhibitor Combination Therapy, Severity of Illness, and Quality of Life Among Children with Perinatally Acquired HIV-1 Infection. Pediatrics. 2005;115(2):173-182. doi:10.1542/peds.2004-1693
Weglarz M, Boland M. Family‐centered Nursing Care of the Perinatally Infected Mother and Child Living with HIV Infection. J Spec Pediatr Nurs. 2005;10(4):161-170. doi:10.1111/j.1744-6155.2005.00037.x
Burr CK, Storm DS, Gross E. A Faculty Trainer Model: Increasing Knowledge and Changing Practice to Improve Perinatal HIV Prevention and Care. AIDS Patient Care STDS. 2006;20(3):183-192. doi:10.1089/apc.2006.20.183
Burr CK, Lampe MA, Corle S, et al. An End to Perinatal HIV: Success in the US Requires Ongoing and Innovative Efforts that Should Expand Globally. J Public Health Policy. 2007;28(2):249-260. doi:10.1057/palgrave.jphp.3200126
Podhurst LS, Storm DS, Dolgonos S. Women’s Opinions about Routine HIV Testing During Pregnancy: Implications for the Opt-Out Approach. AIDS Patient Care STDS. 2009;23(5):331-337. doi:10.1089/apc.2008.0186
Burr CK, Fry RS, Weber S, Armas-Kolostroubis LN, Lampe MA. Integrating Reproductive Health into HIV Care of Women in the United States: It Is Time. AIDS. 2009;23(14):1928-1930. doi:10.1097/qad.0b013e328330f2ee

1990-1999

Joshi VV, Oleske JM, Connor EM. Morphologic Findings in Children with Acquired Immune Deficiency Syndrome: Pathogenesis and Clinical Implications. Pediatr Pathol. 1990;10(1-2):155-165. doi:10.3109/15513819009067104
McKinney RE Jr, Maha MA, Connor EM, et al. A Multicenter Trial of Oral Zidovudine in Children with Advanced Human Immunodeficiency Virus Disease. The Protocol 043 Study Group. N Engl J Med. 1991;324(15):1018-1025. doi:10.1056/NEJM199104113241503
Lewis SY, Haiken HJ, Hoyt LG. Living Beyond the Odds: A Psychosocial Perspective on Long-term Survivors of Pediatric Human Immunodeficiency Virus Infection. J Dev Behav Pediatr. 1994;15(3 Suppl):S12-S17.
Connor EM, Sperling RS, Gelber R, et al. (Oleske J, Colabelli N, & FXB Center Team). Reduction of Maternal-Infant Transmission of Human Immunodeficiency Virus Type 1 with Zidovudine Treatment. N Engl J Med. 1994;331(18):1173-1180. doi:10.1056/nejm199411033311801
Spector SA, Gelber RD, McGrath N, et al. A Controlled Trial of Intravenous Immune Globulin for the Prevention of Serious Bacterial Infections in Children Receiving Zidovudine for Advanced Human Immunodeficiency Virus Infection. Pediatric AIDS Clinical Trials Group. N Engl J Med. 1994;331(18):1181-1187. doi:10.1056/NEJM199411033311802
Lewis SL, Wesley Y, Haiken HJ. Pediatric and Family HIV. Psychosocial Concerns Across the Continuum of Disease. Nurs Clin North Am. 1996;31(1):221-230.

Boland M, Czarniecki L, Haiken H. Coordinated Care for Children with HIV infection. In: Stuber M, ed. Pediatric AIDS: Issues for Psychiatric Clinicians. Washington, DC: American Psychiatric Press; 1992:165-181.
Gomez K, Haiken H, Lewis S. HIV Children’s Support Group. In: Boyd-Franklin N, Steiner G, Boland M, eds. Children, Families, and HIV/AIDS. New York, NY: Guildford Press; 1996.
Lewis S, Haiken H. Contact with Social Service Agencies. In: Zeichner S, Read J, eds. Handbook of Pediatric HIV Care. Philadelphia, PA: Lippincott Williams & Wilkins; 1999.
Haiken H. End of Life Issues. In: Kirton C, ed. ANAC’s Core Curriculum for HIV/AIDS Nursing. Thousand Oaks, CA: Sage Publications; 2003.
Lewis S, Haiken H. Contact with Social Service Agencies. In: Zeichner S, Read J, eds. Textbook of Pediatric HIV Care. New York, NY: Cambridge University Press; 2005:652-660.
Podhurst LS, Hoyt MJ, Dube F, Nhlapo N, Connell L, Ayisic R. Development and Implementation of Training Packages for PMTCT and Pediatric HIV Care. In: Marlink RG, Teitelman S, eds. From Ground Up: Building Comprehensive HIV/AIDS Care Programs in Resource-Limited Settings. Washington, DC: Elizabeth Glaser Pediatrics AIDS Foundation; 2009:127-148.
Weglarz M, Colabelli NB, Gutter D, Corcoran E. Chapter 33: Trauma-Informed care: Responding to Childhood Trauma. In: Halls D, ed. Behavioral Pediatric Healthcare for Nurse Practitioners. A Growth and Developmental Approach to Intercepting Abnormal Behaviors. 1st ed. New York, NY: Springer Publishing Company; 2019:443-450.
Weglarz M, Corcoran E, Gutter D, Barbel P, Brown S, Mulholland JT, Colabelli NB. Chapter 30: Child Abuse: Intercepting Behavioral Health Issues. In: Hallas D, ed. Behavioral Pediatric Healthcare for Nurse Practitioners. A Growth and Developmental Approach to Intercepting Abnormal Behaviors. 1st ed. New York, NY: Springer Publishing Company; 2019:405-414.
Weglarz M, Corcoran E, Gutter D, Colabelli NB. Chapter 31: Foster Care children: Intercepting Behavioral health Issue. In: Hallas D, ed. Behavioral Pediatric Healthcare for Nurse Practitioners. A Growth and Developmental Approach to Intercepting Abnormal Behaviors. 1st ed. New York, NY: Springer Publishing Company; 2019:415-427.
Weglarz M, Corcoran E, Gutter D, Colabelli NB. Chapter 5: Intercepting Stress and Behavioral Health Issues: Building Resiliency in Children. In: Hallas D, ed. Behavioral Pediatric Healthcare for Nurse Practitioners. A Growth and Developmental Approach to Intercepting Abnormal Behaviors. 1st ed. New York, NY: Springer Publishing Company; 2019:55-65.

Boland M, Allread V, Forgash K, Garcia M, Lerner-Weiss N, Paradis N, Podhurst L, Reilly A, Reiss M, Rivera N, Storm D, et al. World Health Organization. (2004). Prevention of Mother-to-Child Transmission of HIV Generic Training Curriculum: Training Programme and Course Director Guide. ISBN 92 4 159203 6 (NLM classification: WC503.2).[1]

[1] This project was a collaboration between the FXB Center at the UMDNJ, the CDC, HRSA, and JHPIEGO, an affiliate of Johns Hopkins University.

For more information contact:

John Nelson, PhD, CNS, CPNP, FAAN
Pronouns: He/Him
Associate Professor
François-Xavier Bagnoud Endowed Chair in Community and Family Centered Care
Program Director, NASC
973-972-6268
nelsonj3@sn.rutgers.edu

Research Approach

Recent Research & Evaluation Topics

Publications

For more information contact:

Recent Research
& Evaluation Topics