Clinical Research and HIV: Working with Consumers

Online multi-media training for healthcare providers

The François-Xavier Bagnoud Center (FXB Center), developed this online multi-media training for healthcare providers to prepare them to support the involvement of consumers in research.

The training was supported by a U.S. Department of Health and Human Services, Health Resources and Services Administration, HIV/AIDS Bureau Part D Training and Technical Assistance Cooperative Agreement with the FXB Center.

This online multi-media training includes 5 narrated modules with embedded video clips, tools and resource information.

The content areas include:

• Explaining the Research Process
• The Role of Community in Research
• The Consumer’s Perspective
• Sources of Research Information
• Supplementary Materials and Tools
• Training Evaluation

The content has been adapted from training materials created by the François-Xavier Bagnoud Center for the International Maternal, Pediatric Adolescent AIDS Clinical Trials Group (IMPAACT) Advisory Board Training, and the Consumer Research Training supported by the U.S. Department of Health and Human Services, Health Resources and Services Administration, HIV/AIDS Bureau.

Please click here to view the modules.

Many thanks to:

• Carolyn K. Burr EdD, RN, and Aliya Jiwani, MPH, for superb acting in the opening video
• Dolly Sanchez for inspiring and enlightening us
• Peter Oates, RN, MSN, NP-C, ACRN, and Heidi Haiken MSW, MPH, LCSW for their productive interview
• Veronica Jones, MPH for her organizational and interview skills extraordinaire
• Mary Jo Hoyt RN, MSN, for sharing materials and advice
• Karen A. Forgash, BA, for her creative talent
• Deborah Storm, PhD, RN, for her wise words
• Matthew Rosenthal and his production team for making it all happen
• Nicole´Mandel for database support
• Jaime Talero and the Target Center for providing a home for the training
• HRSA HAB project officers, Helen Rovito, MS, and Sera Morgan for their ongoing support